Presentations and Posters

Presentations

2018

Holch P (December 2018). eRAPID: Electronic self-report and management of adverse-events for patients undergoing radical radiotherapy (RT) treatments. National PROMs Summit 2018, London.

Velikova G. (November 2018). Web-based system to monitor cancer patients’ physical symptoms during active treatment. International Head & Neck QoL Conference, Leeds.

Velikova G (November 2018). The role of Patient Reported Outcomes (PROs) and Quality of Life Measures in trials and clinical practice. Partnership in Clinical Trials Conference, Barcelona.

Velikova G (September 2018). eRAPID RCT of online monitoring toxicity during chemotherapy.  EORTC QoL Group Meeting, Croatia.

Avery, KNL, Richards, H, Portal, A, Reed, T, Harding, R, Carter, R, Absolom, K, Velikova, G & Blazeby, JM. (June 2018) Feasibility of digital self-report PRO data for monitoring adverse events after discharge following major abdominal cancer surgery: the eRAPID study. In PROMS conference, Birmingham.

Richards, H, Avery, KNL, Portal, A, Reed, T, Harding, R, Carter, R, Absolom, K, Velikova, G & Blazeby, JM. (June 2018) Digital PRO data collection is a beneficial adjunct to patient self. In PROMS conference, Birmingham. Quality of Life Research, S84-S84.

Velikova G, Absolom K, Pini S, Holch T, Warrington L, Holmes M, Gibson A, Rogers Z, Dickinson S, Carter R, Clayton B, Davidson S, Routledge J, Franks K, Henry A (June 2018) eRAPID: electronic patient self-Reporting of Adverse-events: Patient Information and aDvice. Patient recruitment and retention in pilot and randomised studies in oncology. In PROMS conference, Birmingham.

Pompili C, Holch P, Smyllie E, Mazhar H, Absolom K, Franks K, Velikova G. 2018. The role of sociodemographic factors in determining the uptake of electronic PROM completion in lung cancer patients: early indicators from the Life after lung cancer (LILAC) study. – Proceedings: QUALITY OF LIFE RESEARCH 27, pp. S83-S84.

Absolom K, Velikova G and Gibson A (June 2018) Engaging patients and clinicians in online reporting of adverse effects during chemotherapy for cancer. The eRAPID system. In PRO-decision conference Baltimore.

Velikova G (June 2018). eRAPID system in England Integrating Patient Reported Outcome with the Electronic Health Records. In ASCO conference, Chicago.

Velikova G (February 2018). Patient self-reporting of adverse events- update on international developments and local trials. In Bexley Wing Educational Session, Leeds.

Velikova G (January 2018). eRAPID: Patient Reported Outcome Measures (PROMS) in oncology practice. In Yorkshire Cancer Research Bowel Cancer Improvement program and North of England Colorectal Cancer Trials meeting, Leeds.

2017

Velikova G (December 2017). New approaches, new practices – PROs programs: definition and development. In TAO Congress, Cancer Toxicity Management meeting, Paris.

Velikova G (November 2017) How To Integrate Patient Reported Outcome Tools In The Everyday Gynecological Cancer Clinic. In ESGO conference, Vienna.

Velikova G (November 2017) Web-based system to monitor cancer patients’ physical symptoms during active treatment-engaging patients and clinicians. In NCRI conference, Liverpool

Velikova G (November 2017). Patient Reported Outcome Measures (PROMS) in oncology practice. In Life with and Beyond Cancer Conference, Morecambe.

Velikova G (September 2017) Improving Health-Related Quality of Life in Metastatic Breast Cancer. In EORTC Meeting, Kiel.

Velikova G (June 2017) Using Patient Reported Outcome Measures (PROMs) in cancer care. In 2nd Annual UK & Ireland PROMs Research Conference, Oxford.

Holch P (May 2017). eRAPID: Feasibility of completion during and 6 months post treatment International. In ESTRO 36 Pre Meeting Clinical, Vienna.

Holch P (May 2017) Standard of PROM reporting in trials. In ESTRO 36 Pre Meeting Clinical, Vienna.

Velikova G (April 2017) A broader perspective on Patient Reported Outcomes from the International Society for Quality of Life Research In 4th International Quality of Life Conference, Brussels.

Velikova G (March 2017).Using patient reported outcome measures to improve cancer care in Europe. In Cancer PRO Conference, Calgary.

Velikova G (March 2017). Patient Reported Outcomes Measures (PROMs) in NHS cancer practice.  In Routine NHS datasets in applied health research workshop, Leeds.

2016

Absolom K and Kennedy F. (December 2016) Using patient reported data in clinical practice and clinical trials: An update on the eRAPID and REPORT-UK studies. In Leeds Institute for Cancer and Pathology Seminar, Leeds.

Velikova G. (November 2016) Utilising Patient Reported Outcome Measures (PROMS) in clinical trials and oncology practice. An update on the eRAPID and REPORT-UK studies. In Bexley Wing Educational Sessions, Leeds.

Velikova G (November 2016). Electronic patient reported outcomes assessment of chemotherapy and radiotherapy” In RAD51 Scientific Meeting, Leeds.

Velikova G. (November 2016) Web-based electronic system for collecting patient-reported data in oncology practice and clinical trials. Centre for Patient Reported Outcome Research (CPROR) Launch, Birmingham.

Absolom K Warrington L., Gibson A., Holmes M., Rogers Z., Holch P., Clayton B. & Velikova G. (October 2016) eRAPID: Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice A Randomised controlled trial in systemic cancer treatment. In 18th International Psycho Oncology Society Congress (IPOS) Conference, Dublin.

Velikova G and Gilbert A (October 2016), Monitoring of symptoms, toxicity and functioning using PROMs: online toxicity reporting during treatment; models for remote follow-up using PROMs. In Patient Centred and Integrated Cancer Care Workshop for the Associate of Physicians, Manchester.

Velikova G (October 2016) Engaging clinician in care pathways that include online patient self-reports. In Fourth Psycho-oncology Research conference, Melbourne.

Velikova G (October 2016) Integrated care pathways for cancer survivors. A role for patient-reported outcome measures and health informatics. In The Victorian Comprehensive Cancer Centre Survivorship Conference, Melbourne.

Velikova G (October 2016) Web-based system to monitor cancer patient physical symptoms and psychosocial problems in routine clinical practice. In The Fourth Psycho-oncology Research conference, Melbourne.

Holch P, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Absolom K, Velikova G (June 2016) eRAPID: Electronic self- report and management of adverse-events for pelvic radiotherapy (RT) patients. In the PROMS conference, Sheffield.

2015

Holch P, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Bamforth L, Absolom K, Velikova G (April 2015) eRAPID: Electronic self-report and management of adverse-events for radical prostate radiotherapy (RT) patients. In 3rd ESTRO Forum Vol. 115. p S202. Barcelona: Radiotherapy and Oncology

Warrington L, Absolom K, Holch P, Gibson A, Horne B, Carter R, Bamforth L, Velikova G. (June 2015) Usability study of eRAPID: an online system for cancer patients to report symptoms and side-effects during treatment. In Faculty of Medicine and Health Postgraduate Conference. Leeds

2012

Holch, P, Warrington, L & Velikova, G. Can patients self-report adverse events and toxicity during cancer treatment? A cognitive interview study of patient reported toxicity items. Research in progress seminar Institute of Molecular Medicine: University of Leeds February (Oral presentation)

2011      

Holch, P. & Velikova, G. Bridging the gap: Development of guidelines for oncologists to manage emotional distress in cancer patients. Compass Collaborative final annual scientific meeting: Edinburgh April.

Holch, P. Do antidepressants have a place in the management of emotional distress in cancer patients? Views of oncology professionals. Research in progress seminar Institute of Molecular Medicine: University of Leeds June

2010

Sally Taylor Patient Responses to an Individualised Concerns Checklist
Ada Keding, Sarah Brown, Ronnie Matthews, Helen Thorpe, Julia Brown, David Jayne Postoperative Complications and Quality of Life following Colorectal Cancer Surgery

 

Posters

2016

Holch P, Holmes M, Rogers Z, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Velikova G (March 2016) Seeking consensus from staff and patients on appropriate patient reported (PRO) items for radical prostate patients in the eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice) project: A Delphi study In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

Rogers Z, Holch P, Holmes M, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Dickinson S, Velikova G (March 2016) Healthcare Professional (HCP) attitudes to the implementation of eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice) during and after pelvic radiotherapy: A qualitative interview study. In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

Warrington L, Absolom K, Holmes M, Rogers Z, Gibson A, Clayton B, Holch P, Carter R, Kellar I, Conner M, Velikova G (March 2016) Does the Patient Activation Measure (PAM) predict engagement with an online system for patients to report and manage symptoms during and after cancer treatment? In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

Holmes M, Holch P, Rogers Z, Dickinson S, Davidson S, Routledge J, Henry A, Franks K, Gilbert A, Velikova G (March 2016) Patient and relatives attitudes to the implementation of eRAPID (Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice) during and after pelvic radiotherapy: A qualitative interview study. In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

Kennedy F, Clayton B, Absolom K, Francischetto EO, Flintoff L, Gordon K, Crocombe W, Cicero R, Hiley V, Bamforth L, Blazeby J, Brown J, Velikova G (March 2016) Real-time Electronic Patient Outcome ReporTing of adverse events – is it feasible in UK cancer trials? Findings from a proof-of-principle study. In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

Ghattaure M, Holborn C, Holch P (March 2016) Assessing the information and support needs of radical prostate cancer patients and acceptability of a group based treatment review: A questionnaire and qualitative interview study. In The British Psychosocial Oncology Society’s (BPOS) Annual Conference. Cambridge

2015

Velikova G, Morden J, Barrett-Lee P, Bloomfield D, Brunt M, Canney P, Coleman R, Russel S, Verrill M, Wardley A, Bliss J, Cameron D (2015) Quality of Life (QOL) Results of the UK TACT2 Trial: More Intensive Chemotherapy for Early Breast Cancer (EBC) Has a Measurable Impact on Patient-Reported Symptoms and Functioning In 22nd International Society for Quality of Life Research Vol. 24. p 91. Vancouver: Springer

Avery K, O’Connell Francischetto E, Velikova G, Blazeby JM. (November 2015) Assessment of patient-reported adverse events after discharge from hospital in RCTs in gastrointestinal cancer surgery: is there sufficient coverage in existing EORTC questionnaires? In 3rd International Clinical Trials Methodology Conference. Glasgow

Francischetto EO, Avery K, Velikova G, Blazeby J (October 2015) Assessment of patient-reported adverse events after discharge from hospital following gastrointestinal cancer surgery: do EORTC disease-specific modules have sufficient coverage to monitor recovery and detect problems early? In ISOQOL 22nd Annual Conference Vol. 24. pp 1-191. Vancouver: Quality of Life Research

Warrington L, Absolom K, Holch P, Gibson A, Horne B, Carter R, Bamforth L, Velikova G (July 2015) Usability study of eRAPID: an online system for cancer patients to report symptoms and side-effects during treatment. In Yorkshire Cancer Research Annual Meeting. Harrogate

Warrington L, Absolom K, Holch P, Gibson A, Horne B, Carter R, Bamforth L, Velikova G. (June 2015) Usability study of eRAPID: an online system for cancer patients to report symptoms and side-effects during treatment. In MHealth. Galway

Warrington L, Absolom K, Holch P, Gibson A, Horne B, Carter R, Bamforth L, Velikova G (June 2015) Usability study of eRAPID: an online system for cancer patients to report symptoms and side-effects during treatment. In Innovations in Health Psychology. Galway

Gibson A., Absolom K, Warrington L, Holch T, Holmes M, Clayton B, Rogers Z, Velikova G. (June 2015) An Overview of eRAPID: electronic patient self-Reporting of Adverse-events: Patient Information and aDvice. A Randomised controlled trial in systemic cancer treatment. In UK Clinical Trials Conference for Supportive Care in Cancer Research. Sheffield

Warrington L, Absolom K, Holch P, Gibson A, Clayton B, Carter R, Bamforth L, Velikova G. (May 2015) Developing a system for cancer patients to report symptoms and side-effects of treatment online (eRAPID): Patient experiences from a usability study. In White Rose Doctoral Training Centre Conference. York

Warrington L, Absolom K, Holch P, Gibson A, Clayton B, Carter R, Bamforth L, Velikova G. (March 2015) Developing a system for cancer patients to report symptoms and side-effects of treatment online (eRAPID): Patient experiences from a usability study. In The British Psychosocial Oncology Society (BPOS) Annual Conference Vol. 24. pp 7-8. Leeds: Psycho-Oncology

Holch P, Henry A, Franks K, Davidson S, Routledge J, Shearsmith L, Gilbert A, Ingleson E, Albutt A, Velikova G (March 2015) Instruments to record acute and late adverse events (AE) associated with radical prostate cancer treatment for remote monitoring in clinical practice: A systematic review of randomised controlled trials (RCT). In British Psychosocial Oncology Society Conference Vol. 24. pp 11-12. Leeds: Psycho-Oncology

2014

Morrison V, Holmes M, Gollins S (2014) Assessing Needs in Cancer Patients: Unmet Needs and Feasibility of Assessment. In BPS Health Psychology Conference Vol. 16. p 553. York: The European Health Psychologist

Morrison V., Holmes M, Gollins S. (2014) Needs assessment in cancer: from development to the beginnings of implementation. In The British Psychosocial Oncology Society’s (BPOS) Annual Conference Preston: Psycho-Oncology,23, p 8

Holch P, Henry A, Franks K, Davidson S, Routledge J, Shearsmith L, Gilbert A, Ingleson E, Albutt A, Velikova G. (November 2014) Instruments to record acute and late adverse events (AE) associated with radical prostate cancer treatment for remote monitoring in clinical practice: A systematic review of randomised controlled trials (RCT). In NCRI Annual Conference. Liverpool

2012

Holch, P, Warrington, L & Velikova, G. Can patients self-report adverse events and toxicity during cancer treatment? A cognitive interview study of patient reported toxicity items. British Psychosocial Oncology Society Annual Conference: January Leeds UK (Poster presentation)

2011

Holch P, Absolom, K, K. Hill, K. Pini, S. Lui, A. Sharpe, M. Richardson, A. & Velikova, G. Do antidepressants have a place in the management of emotional distress in cancer patients? views of oncology professionals. Compass Collaborative final annual scientific meeting: Edinburgh April. (Poster presentation)

2010

Holch P, Absolom, K, K. Hill, K. Pini, S. Lui, A. Sharpe, M. Richardson, A. & Velikova, G. Do antidepressants have a place in the management of emotional distress in cancer patients? views of oncology professionals. British Psychosocial Oncology Society: Chester UK. (Poster presentation)

Holch P, Velikova, G.  Bridging the gap: Development of guidelines for oncologists to manage emotional distress in cancer patients : Chester UK. (Poster presentation)

2007

Chow E, Harris K, Tharmalingam S, Bezjak A, Wu J, Barton M, Eek R, Shafiq J, Velikova G, Bottomley A, Grp E-QBD (2007) Early phase in the development of a bone metastases quality of life module. Clin Oncol 19: S26-S26

Fisher S, Donnelly A, Newsham A, Johnston C, Smith A, Selby P, Velikova G (2007) Individual assessment of quality of life: a communication tool for modern practice. Oral Oncol 2: 92-93

Marshall LC, Newsham A, Smith A, Wright EP, Velikova G (2007) Sexual difficulties in cancer patients: A longitudinal study. Psychooncology 16: S270-S271

Podmore EJ, Marshall LC, Wright P, Selby PJ, Velikova G (2007) Routine assessment of social difficulties in cancer patients: Are we opening Pandora’s box? Psychooncology 16: S123-S124

Smith AB, Campbell L, Selby PJ, Brown J, Velikova G (2007a) Identifying levels of psychological distress prompting discussion & further action in oncology. Psychooncology 16: S126-S127

Smith AB, Campbell L, Selby PJ, Brown J, Velikova G (2007b) Predictors of changes in psychological well-being over time. Psychooncology 16: S241-S241

Smith AB, Wright EP, Selby PJ, Velikova G (2007c) Agreement between the summary indices of the FACT-G and EORTC QLQ-C30: A preliminary analysis. Psychooncology 16: S241-S242

Smith AB, Wright EP, Selby PJ, Velikova G (2007d) The dimensional structure of the Functional Assessment of Cancer Therapy-General (FACT-G). Psychooncology 16: 274-274

Velikova G, Selby PJ, Brown J (2007) Informing physicians of cancer patients quality of life (QOL) – Physicians’ attitude, effects on communication and decision-making. Psychooncology 16: S6-S7

Wright P, Smith AB, Roberts K, Selby PJ, Velikova G (2007) Patient-centered assessment using the Social Difficulties Inventory (SDI): Guidance for staff. Psychooncology 16: S9-S10

2006

Tharmalingam S, Bezjak A, Wu J, Velikova G, Bottomley A, Chow E (2006) Patients’ and health care professionals’ perspectives on the most important quality of life issues in bone metastases. Radiother Oncol 80: S57-S58

2005

Smith A, Rush R, Harvey P, Swanson H, Velikova G, Wall L, Wright EP, Selby P, Stark D, Sharpe M (2005a) Developing an item bank to measure psychological distress in cancerpatients using Rasch models. J Clin Oncol 23: 755S-755S

Smith AB, Fallowfield L, Jenkins V, Velikova G, Selby PJ (2005b) The factor structure & scoring of the GHQ12: A Rasch analysis. Psychooncology 14: 1084-1085

Wright, E. P., Booth, L., Winterbottom, A., Reid, N., Selby, P., Johnston, C., Smith, A., & Velikova, G. 2005, Changes in reported social difficulties in the year following cancer diagnosis, Psycho-Oncology, vol. 14, no. 12, p. 1086.

Smith, A. B., Velikova, G. V., Campbell, L., Awad, N., Faithorn, S., Stack, R., Hofmann, U., Booth, L., Lynch, P., Winterbottom, A., Reid, N., Brown, J. M., & Selby, P. 2005, Informing physicians of cancer patients’ quality of life (QOL) – Effects on discussion of psychological issues, Psycho-Oncology, vol. 14, no. 12, p. 1088.

Wright, E. P., Reid, N., Campbell, L. J., Smith, A., Booth, L., Winterbottom, A., Johnston, C., Velikova, G., & Selby, P. 2005, Distress and social support over time in newly diagnosed cancer patients, Psycho-Oncology, vol. 14, no. 12, pp. 1086-1087.

2004

Booth, L., Wright, P., Johnston, C., Winterbottom, A., & Selby, P. 2004, What are the social difficulties of newly diagnosed cancer patients and how are they associated with sociodemographic factors and quality of life (QL)?, Psycho-Oncology, vol. 13, no. 8, p. S156-S157.Coles-Gale RE, Velikova G, Awad N, Brown J, Wright P (2004) Focus groups: Doctor and patient views on routine quality of life measurement in oncology practice.Psychooncology 13: S158-S158Edwards, L. J. R., Sanders, R., & Selby, P. 2004, Molecular genetic determinants of psychological morbidity in cancer patients, American Journal of Medical Genetics Part B-Neuropsychiatric Genetics, vol. 130B, no. 1, p. 115.Velikova G, Weis J, Watson M, Morris P, Kopp M, Hjermstad M, Sezer O, Grp EQL (2004) EORTC questionnaire module for assessment of quality of life during and after high-dose treatment: update of the module development.In Bone Marrow Transplantation Vol. 33. pp S54-S54

2003

Booth L, Lynch P, Smith A, Selby P, Brown J, Velikova G (2003) Patients’ and doctors’ attitude to the routine use of quality of life (QL) assessment in oncology practice.Psychooncology 12: 828Brown J, Velikova G, Selby P (2003) Practical issues in design, conduct and analysis of a RCT to assess quality of life measurement in daily oncology practice.Control Clin Trials 24: 148S-148SSmith AB, Velikova G, Booth L, Lynch P, Wright EP, Selby PJ (2003) Rasch analyses of quality of life data: Implications for clinical significance.Psychooncology 12: 635-635Velikova G, Brown JM, Lynch P, Booth L, Smith AB, Selby P (2003a) Content analysis of doctor-patient communication during oncology consultations.Psychooncology 12: 637-638Velikova G, Weis J, Watson M, Morris P, Kopp M, Hjermstad MJ, Sezer O (2003b) Development of EORTC questionnaire module for quality of life assessment during and after high-dose chemotherapy and haematopoietic stem cell transplantation.Blood 102: 435b-435bWright EP, Kiely M, Johnson C, Cull A, Smith AB, Selby PJ (2003a) Evaluation of the social problems inventory (SPI).Psychooncology 12: S85-S85Wright, P., Kiely, M., Johnston, C., Smith, A., Cull, A., & Selby, P. 2003, Cancer patients and social difficulties, Psycho-Oncology, vol. 12, no. 8, pp. 833-834.

2002
Kiely MA, Wright EP, Lynch P, Cull A, Selby PJ (2002) Developing a social problems inventory – The patient contribution.Psychooncology 11: 554-554Smith, A. B., Lynch, P., Velikova, G., & Selby, P. J. 2002, Agreement between quality-of-life instruments: EORTC-QLQ C30, FACT-G, MHI-5 & HADS, Psycho-Oncology, vol. 11, no. 6, p. 556.Smith, A. B., Velikova, G. L., & Selby, P. J. 2002, A Rasch analysis of the functional scales of the European Organization for Research and Treatment of Cancer QLQ-C30 and the implications for clinical significance, Clinical Therapeutics, vol. 24, pp. 34-35.Velikova, G. L., Brown, J. M., Smith, A. B., & Selby, P. J. 2002, Use of individual quality-of-life data in oncology consultations: Approach to interpretation of individual results and physicians’ feedback on clinical usefulness, Clinical Therapeutics, vol. 24, p. 26.

2001

Smith, A. B., Velikova, G., & Selby, P. J. 2001, Computer-assisted quality of life questionnaires, British Journal of Cancer, vol. 85, p. 67.

Stark, D., Kiely, M., Smith, A., Selby, P., & House, A. 2001, Anxiety in cancer patients, British Journal of Cancer, vol. 85, p. 65.

Wright, E. P., Kiely, M., Cull, A., & Selby, P. J. Development of a Social Problems Screening Instrument (SPSI) for use in oncology clinics. British Journal of Cancer 85[Supplement 1], 66. 2001.

Velikova, G., Brown, J., Smith, A., Stark, D., Perren, T., Wright, P., & Selby, P. 2001, Computer-administered individual quality of life assessments in oncology practice, British Journal of Cancer, vol. 85, p. 67.

Pre-2001

Cull, A., Gould, A., House, A., Smith, A., Strong, V., Velikova, G., Wright, P., & Selby, P. 2000, Automating screening for psychological distress, Psycho-Oncology, vol. 9, no. 5, p. 154.

Velikova, G., Wright, E. P., Smith, A. B., Stark, D., Brown, J., & Selby, P. 1999, Self-reported quality of life (QL) of individual cancer patients – Concordance of results with clinical course and medical records, European Journal of Cancer, vol. 35, p. 1107.

Wright, E. P., Chappell, J., Smith, A. B., Strong, V., Cull, A., Gould, A., Velikova, G., & Selby, P. 1999, Automated screening and recording of quality of life data: A feasibility study, European Journal of Cancer, vol. 35, p. 1117

Velikova G, Wright EP, Smith AB, Cull A, Gould A, Forman D, Perren T, Brown J, Stead M, Selby PJ (1998) Effect of mode of administration of Quality of Life (QL) measures on patients responses. Psychooncology 7: 178-178